Exactly right as EDS is very hard to find and treat. Opioids work best for everyone with chronic illnesses and chronic pain. It took 9 years for me to be diagnosed with MS, then DDD in my entire spine, OA, Osteoporosis, Fibromyalgia, IC and Migraines. I’ve had 3 spinal surgeries and another major one is scheduled. When will our government realize that there are many diseases without a cure for whic opioids are our only option. Please send them my way so they can study my chronic illnesses and chronic pain?
The purpose of this study was to assess the pain control methods in use by patients who have Ehlers-Danlos Syndrome (EDS), a group of connective tissue disorders, and their perceived effectiveness.
METHOD: This descriptive study involved 1179 adults diagnosed with EDS who completed an anonymous on-line survey.
The survey consisted of demographics information, the Patient Reported Outcomes Measurement Information System (PROMIS) Pain-Behavior, PROMIS Pain-Interference, and Neuro QOL Satisfaction with Social Roles and Activities scales, as well as a modified version of the Pain Management Strategies Survey.
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