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Weathering the Daily Struggle

Exception article and I left my long comment or rant. I hope people read it who’s life has been affected by a chronic illness or disease. It’s there I went into great detail on how it’s recently affected my husbands coworker and myself. Very well written and appreciated.


“There’s a lot going on right now.”

That’s been a common refrain for me since I started a new job and my husband had to have emergency knee surgery. I know it sounds like an excuse when I say that about why I don’t have time to read, or to paint, or hang out with friends. They probably think it is an excuse too. But the one who used to take care of everything else so I could work and pursue my hobbies is now severely limited in what he can do. So it’s all on me now. I just hope that whenever I say that, nobody asks me what exactly is “on me now.”

Because the truth is that there nothing going on with me right now that hasn’t been going on forever in everybody else’s lives. But with a chronic illness like fibromyalgia which limits my daily energy…

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Safety concerns with CDC opoioid calculator

Thank you received via email from Dr. Fudin and hadn’t had time to share. It’ll now post to Facebook and Twitter
Thank you for posting for all to see.

EDS and Chronic Pain News & Info

Safety concerns with the Centers for Disease Control opioid calculator – by Jeffrey Fudin, Mena Raouf, Erica  L Wegrzyn, Michael E Schatman

This is a scientific rebuttal to the CDC’s reliance on an opioid MME converter to standardize and regulate doses.

Morphine milligram equivalence (MME) and other comparable acronyms have been employed in federal pain guidelines and used by policy makers to limit opioid prescribing 

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DEA Statement Promoting Pain Relief

EDS and Chronic Pain News & Info

Promoting Pain Relief and Preventing Abuse of Pain Medications: A Critical Balancing Act – A joint statement from 21 health organizations and the Drug Enforcement Administration (DEA).

In this PDF file from October 2016, I found surprisingly patient-centered statements endorsed by the DEA, like:

“For many patients, opioid analgesics… are the most effective way to treat their pain, and often the only treatment option that provides significant relief.”

…share a responsibility for ensuring that prescription pain medications are available to the patients who need them

However, I don’t see any indication the DEA is following its own “consensus statement”.  

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I Wore a Blindfold and Asked People to Write Their Pain on My Body. This Is What Happened.

Great idea and I will have it done ASAP Thank you 😊 and we know how hard it must have been. Too many know how hard it is, and that’s not only sad 😭, but heartbreaking


If you don’t already know, pain is a deeply personal subject for me. I have been fightingankylosing spondylitis (AS)since 2000, since I was 13. AS is an often-invisible, progressive disease that attacks joints of the body with painful inflammation. In severe cases, it can cause bone spurs to grow that can fuse the spine into a single long column of bone. AS can also damage multiple organs, including the intestines, liver, kidney, lungs, heart, and eyes. There is no cure.

I have made it my mission in life to do something about that ‘no cure’ part by raising awareness in all the ways that I can. I have been on the news, written articles, interviewed celebrities, represented patients at conferences and meetings, given speeches (including a TEDx talk), and testified in state legislative hearings and with members of Congress on Capitol Hill.

Recently I became…

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Pain, Not Catastrophizing, Predicts Opioid Use

My thoughts exactly and then some. You hit the nail on the head every time even in the article inside. Science is corrupt and ass backwards.

EDS and Chronic Pain News & Info

Pain Severity Leading Predictor of Prolonged Opioid Use After SurgeryAmerican Pain Society – Sept. 5, 2017

Thank goodness, someone finally did research to prove the obvious:

It’s not catastrophizing that predicts who will still take opioids months after surgery, it’s the severity of the original pain/injury/illness.

New research reported in The Journal of Pain shows the strongest predictive factors for prolonged opioid use after a traumatic musculoskeletal injury and surgery are pain severity and a poor sense of control over pain.  The Journal of Pain is the peer-reviewed publication of the American Pain Society.  

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Studies Show Heroin Crisis Not Caused by Medical Use of Rx Opioids

EDS and Chronic Pain News & Info

Heroin Crisis Not Caused by Medical use of Rx Opioids: Research Gives Context To Addressing Nation’s Drug Abuse Crisis, Review Finds | Kaiser Health News

Prescription painkiller abuse is drawing national attention as states battle increasing abuse cases, presidential candidates offer possible solutions and even President Barack Obama includes the issue in his State of the Union address Tuesday night.

The review of recent studies examines the often cited link between abuse of prescription painkillers and heroin use. That consequence, the researchers say, fuels the need for better treatment and prevention of prescription drug abuse.

They noted, however, that  although the majority of current heroin users report having used prescription opioids nonmedically before they initiated heroin use,

heroin use among people who use prescription opioids for nonmedical reasons is rare, and the transition to heroin use appears to occur at a low rate.”  

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An Inconvenient Footnote in the Opioid Crisis

EDS and Chronic Pain News & Info

An Inconvenient Footnote in the Opioid Crisis — Pain News Network –  August 17, 2017 By Roger Chriss, Columnist

The evidence clearly shows that the opioid crisis is being driven primarily by illegal drugs.Time magazine reports that in a large national survey, 60% of those who reported misusing opioid medication did so without a prescription.

“About 40% of these people accessed opioids free from friends or relatives. Among people who developed addiction or other abuse disorders, 14% said they bought them from drug dealers or strangers,” Time said.

Moreover, people who are addicted to heroin rarely get their start with opioids prescribed for a valid medical condition. 

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