Updated Opioid Guidelines for State Medical Boards 

EDS and Chronic Pain News & Info

Updated Opioid Guidelines Released for State Medical Boards – June 23, 2017 – By Kelly Rehan

“Guidelines emphasize individual treatment as opposed to rigid standards.”

The Federation of State Medical Boards (FSMB) released updated guidelines for using opioid analgesics to manage chronic, non-cancer pain. 

The updated document, which stresses safety through an individualized treatment approach, aligns with recent opioid advisories from the Centers for Disease Control and Prevention (CDC) and the US Food and Drug Administration (FDA).  

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Parents kill child & themselves due to chronic pain. Why wasn’t he treated? How many go unreported?

The Global Pain Crisis | Psychology Today – May 2017 Images and words of America’s opioid overdose epidemic have captured headlines and TV news feeds for the last several years. But there’s a different image seared into my mind, a mental picture of a different little kid and two adults. This one never made it into […]

via Parents Kill Child in Too Much Pain to Live — EDS and Chronic Pain News

Pain Prescriptions Are Not Cause of Addiction

EDS and Chronic Pain News & Info

Opioid Addiction Is a Huge Problem, but Pain Prescriptions Are Not the Cause | Scientific American |May 10, 2016
Another insightful article by Maia Szalavitz:

Both the FDA and the CDC have recently taken steps to address an epidemic of opioid overdose and addiction, which is now killing some 29,000 Americans each year. But these regulatory efforts will fail unless we acknowledge that the problem is actually driven by illicit—not medical—drug use.

the simple reality is this: According to the large, annually repeated and representative National Survey on Drug Use and Health, 75 percent of all opioid misuse starts with people using medication that wasn’t prescribed for them—obtained from a friend, family member or dealer. 

And 90 percent of all addictions—no matter what the drug—start in the adolescent and young adult years. 

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An Opioid Survey and a Maternal Chronic Pain Study

EDS and Chronic Pain News & Info

Opioid Survey re Overdose Epidemic

This is an inclusive survey for all opioid users (legitimate or illegal), their family members, and physicians. It seems designed to capture a comprehensive snapshot of the situation.

We’re interested in hearing about how the opioid epidemic and the public health response to it are affecting patients and doctors, family members and addicts.

This survey will be used by the Bend Bulletin, a daily newspaper in Bend, Oregon, to gather information on how the opioid epidemic has impacted different types of people, and to track how efforts to address the crisis are impacting them.

A unique characteristic of the survey is that it does not assume you are either a patient of a person with addiction, but lets you state your relationship to these drugs:  

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True Story … Unfortunately A Story We Hear All Too Often

This is so wrong and happening everyday
For the man, family and more we all must pray
The CDC guidelines caused all of this pain
It’s them and the government that stands to gain
Why is this happening when their evidence was weak
The Alphabet soup is killing all sick and weak making our outcome look bleak
Once we all functioned and had quality of life
Now we all must continue to fight for all of our rights
We’re advocating hard and won’t ever stop our fight
All in charge tell us ” just suck it up” and we refuse to lose another life.
We’re keeping track of all of their names
They must know they didn’t die in vain.



Authored by Patient Advocate Lana Kirby for my good friend in Florida who lost her husband due to complications from pain med restrictions from, among other things, EDS (Ehlers-Danlos syndromes are a group of connective tissue disorders that can be inherited and are varied both in how affect the body and in their genetic causes. They are generally characterized by joint hypermobility (joints that stretch further than normal), skin hyperextensibility (skin that can be stretched further than normal), and tissue fragility). The pain can be debilitating. In this case, it led to his death.  The victim’s 17 year old daughter suffers from the same auto immune. Her daughter was stable prior to the Guidelines, but is now only allowed morphine patches which are too strong, but she’s not allowed anything else. Prayers to you and your…

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Have you lived my story, life, or walked in my shoes? 


What gets me is that the people judging those of us who need pain meds to function are not keeping up with the fact that people are overdosing on other medications that are being prescribed instead. The two I have seen are Gabapentin and Lyrica. With every medication someone takes, even an aspirin, you have to outweigh the risks versus the benefits. We know what the risks are. My question is do the people making our decisions for us ask themselves the same questions about their medications? Every medication, aspirin, blood pressure meds, Tylenol, Benadryl, antibiotics…..

I am very honest about my migraines and everything that comes with it. Depression, sleep, anxiety, constant pain, even my suicidal thoughts. Suicide is not the answer for me. I have people in my life that have been directly affected by it and I refuse to put my family through that. My family doesn’t…

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Opioid-Maintained Patients Who Require Surgery

Exactly the point of post operative care, but we know this isn’t happening. One suffers more after surgery and that means more pain, not less until it’s known if the surgery worked.

EDS and Chronic Pain News & Info

Opioid-Maintained Patients Who Require SurgeryMarch 15, 2016, – By Forest Tennant, MD, DrPH

A practical, common problem in pain management is how to handle a patient already maintained on opioids and about to undergo surgery.

The American Pain Society recently released new guidelines for the perioperative and postoperative pain management.

The guidelines recommend that clinicians should counsel patients to continue regularly prescribed opioids during the preoperative period unless there is a plan to taper or discontinue opioids. 

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